PTSD Blog Seizures

10 days.

10 days.

10 days until I’m admitted into the hospital for neurosurgery and a bit of a lengthy stay.

I have seizures that are unable to be controlled by medications, so soon I will be having a surgical procedure that will remove the part of my brain that causes them – but first, they have to locate where exactly that is.

So on November 6th I will have electrode grids implanted onto the surface of my brain, be taken off of all of my anti-seizure medication, and be monitored for up to 30 days in the hospital in an attempt to localize my seizures. Once they have enough data, I’ll go back into surgery to have the hardware removed and go home.

I’ve been doing my best to prepare myself for what’s about to happen, going to the gym to condition my body, etc. But I am not going to lie – I am one hot mess.

This is such a huge step forward in my treatment! Anybody have an answer as to how somebody can be so excited and terrified at the same time?

It’s not just the physical pain of the surgery or fear of complications, but the idea of being on camera 24/7 all that time during the monitoring.

With PTSD, it can be SO difficult to allow yourself to let go and completely trust so many people with your body. Anxiety has been booming.

Ahh yes, and the hospital that I’m having the surgery at is 2 hours away from home. There will be times my rock, my husband, will not be able to be by my side. So there’s that.

Onward and upward. Everything is going to be good.

10 days, my friends. Thank you for letting me share. πŸ™‚

Getting a video eeg. The most boring thing on earth, except for the seizures.Ready to head home after yet another hospital stay.Getting ready for surgery by conditioning at the gym

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44 comments

Michelle Skaar October 27, 2018 at 2:10 pm

God speed, sweetie! Since my cancer treatment started 4 weeks ago, my seizures have increased, and for the first time, one of my doctor’s, actually got to see me have one. I’ll be having another EEG in a month… By then, the chemo & rad should be done, so my strength should be back up, and, hopefully they’ll back off again. I was only getting getting them when my cycle would come around, and the cancer treatment is supposed to be permanent menopause, so…

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Diane October 27, 2018 at 2:16 pm

Oh babe, great big {{{HUG}}} to you! I hope they ease off and sending love and positive thoughts to you <3 <3 <3

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Michelle Skaar October 27, 2018 at 2:24 pm

A Little Bent, we are just about 2 peas in a pod, I swear πŸ˜‰. I just can’t imagine what you are going through, though… Wish I could be there for you, for support.πŸ’ͺπŸ‘

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Diane October 27, 2018 at 2:30 pm

We’re here for each other ✊πŸ’ͺ stay strong and in touch πŸ’–

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Michelle Skaar October 27, 2018 at 2:36 pm

A Little Bent you bet!πŸ’ž

Melissa Penix October 27, 2018 at 2:16 pm

You got this!!! Breathe and look to the future. This is just a moment and it will pass and you’ll be more awesome after than you are now.

I know- how could that be possible!!!

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Diane October 27, 2018 at 4:21 pm

LOL!!!

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Rhonda Berry October 27, 2018 at 2:22 pm

Prayers going up for you! Trusting that all will turn out well !!

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Hugh Patrick October 27, 2018 at 2:26 pm

May Jesus be with you.

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Debra Ferguson Roberts October 27, 2018 at 2:36 pm

Stay Strong…πŸ’ž

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Eleanore Kenady Jackson October 27, 2018 at 2:39 pm

I will be thinking of you and your family. Positive vibes are coming your way. Stay in touch. Bring lots of books!

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Melanie Parsons October 27, 2018 at 2:44 pm

Prayers for peace and a wonderful outcome for you. πŸ’—πŸ’•πŸ™πŸ»πŸ’•πŸ’—

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Christina A Doherty-Hawco October 27, 2018 at 2:56 pm

………….Good luck πŸ€

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Monica Rose Elliott October 27, 2018 at 2:59 pm

I love you. We are praying for you. You are strong and courageous. We are with you. You are I are a little bent ❀ together

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Diane October 27, 2018 at 4:20 pm

I love you too Moni ❀❀❀

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BΓ©a Pucca October 27, 2018 at 3:04 pm

All my love for you… Stay strong… We are with u ❀

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Alisha Rains Cheatham October 27, 2018 at 3:07 pm

Good luck to you!

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Laurie Ann Marrano-Johnson October 27, 2018 at 3:15 pm

In all of this lies promise. You are putting in the time and work and effort to be well. Praying for a wonderful outcome, beautiful warrior woman.

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April Rae October 27, 2018 at 3:17 pm

Sending good vibes…πŸ’•

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Jennifer Gee October 27, 2018 at 3:25 pm

Sending love and light and praying for a full recovery to live your life without seizures. β€πŸ’žβ€ HUGS! Remember to breathe… ☺❀πŸ’ͺπŸ’žβ€

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Shana Stephenson October 27, 2018 at 3:26 pm

Huge hug!!! Wishing you a speedy recovery too!

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Christine Dyer October 27, 2018 at 3:26 pm

Holy crap! I see how this is so scary, exciting and majorly anxiety producing all at once. Best of luck.

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Shellie Ball October 27, 2018 at 3:30 pm

You got this!!! Good vibes and prayers for you..

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Barbara Beers October 27, 2018 at 3:32 pm

I am sure many prayers are being sent for you to ease your apprehension , you have a rock and when he can’t be there remember God will be by your side all will go well and you will be able to have a more normal life I know a young woman who had brain surgery too, she is well, happy and living a normal life. Prayers being sent.

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Ta'nia Laker October 27, 2018 at 3:36 pm

You got this! Hugs and love !

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Donna Slavich October 27, 2018 at 3:57 pm

You are a beautiful soul and yes, you got this. Prayers for you for swift healing and may your surgeons have steady hands. Bless you in this journey.

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Diane December 7, 2018 at 4:27 pm

Thank you so much, Donna. That means a lot to me – I always love seeing your name and words here. I hope you and your husband are well <3

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Donna Slavich October 27, 2018 at 4:30 pm

We are, thank you. You have been an inspiration to me. I hope you know that.

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Diane October 27, 2018 at 4:32 pm

<3

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Mary Clark October 27, 2018 at 4:06 pm

It’ll go great!

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Julie Stenner October 27, 2018 at 4:11 pm

My thoughts and prayers are with you and all involved, directly or indirectly. I too, have seizures and I believe they are under control with medication although I have them in my sleep and am usually unaware that I’m even having them. May God be with you πŸ™

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Alma Viniegra October 27, 2018 at 4:21 pm

Will you have seizure focus removed after grid is removed? Rns? VNS?

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Diane October 27, 2018 at 4:25 pm

We were hoping to have it removed immediately during the same admission, however since I’m non-lesional it’s going to be two separate procedures. I’ll be going home to recover after this procedure while they analyze the information, and then go in again for what we’re assuming is to be a partial right temporal resection. RNS is a no go in my particular situation, VNS has been discussed but only if a resection was clearly not an option for some reason…

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Alma Viniegra October 27, 2018 at 4:27 pm

Best wishes. I work for a neurosurgeon at Barrow. Kris Smith.

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Diane October 27, 2018 at 4:32 pm

He was going to be my neurosurgeon until my insurance switched over at the beginning of the year – I had an appointment with him in February, but it was cancelled because St. Joe’s wouldn’t let us use the OR. πŸ™ I’m at Banner now though – the surgery is going to be in Tucson.

I was a patient at Barrow all year – my entire workup was there except for my MEG at UCSF. My neuro was Dr. Shvarts, wonderful doctor.

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Alma Viniegra October 27, 2018 at 4:40 pm

I’m sorry to hear that. Insurance has limited a lot these days. I wish you the best and look forward to following your story.❀

Diane October 27, 2018 at 4:45 pm

Thanks Alma. For the record, Dr Shvarts REALLY wanted Dr Smith for my case – due to the difficulty in finding the seizure focus. Said he was absolutely the best in the valley.

If my insurance changes I’ll be making an appointment. πŸ™‚

Oh I also want to clarify that I’m very happy with my current neurosurgeon, LOL! The two hour drive is just a bit inconvenient. πŸ™‚

Cyndi Kline October 27, 2018 at 4:30 pm

I’m sorry you have to have all this in your life. I wish you great success in this journey. Many hugs. And prayers my friend. I miss the times we spent together working and playing. Much love❀

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Diane October 27, 2018 at 4:39 pm

Love back to you, my friend. I still remember you teaching me how to sew my own scrubs πŸ™‚ I miss our times at the creek! I’m surprised you didn’t make a crack about how strong a saw blade they’re going to need to get into my noggin. πŸ˜‰

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Cyndi Kline October 27, 2018 at 4:52 pm

never

Life flys by so fast. Many good times

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Diane October 27, 2018 at 5:04 pm

Boy it sure does

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Marion Irwin October 27, 2018 at 4:48 pm

Oh my goodness, I’m so happy for you! You got this! I know everything is going to be better once it’s over. I will continue to pray for you. You deserve nothing but the best. Please keep us posted.

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Terry Zuege October 27, 2018 at 5:06 pm

πŸ™πŸ™πŸ™πŸ™prayersπŸ™πŸ™πŸ™πŸ™

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Christianna Epps Wheeler November 3, 2018 at 3:21 pm

My heart is with you. We will follow your journey

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