epilepsy

Featured My First Tonic-Clonic Seizure

Diane
The day it came seemed much like any other day. It was a day of running errands, then back home – but unlike most days, this day ended with me frightened and confused. It was a day that I could have never predicted, nor wanted.   This was the day I had my first tonic-clonic seizure. Home after errands, I break out my laptop to do a little work and sit on the couch in the living room. Then comes the familiar tingle, deep in my abdomen… Then “whhhhooooosh.” Up from my abdomen, a breathlessness rushes into my chest, and

Post-Op Lobectomy Follow-ups All Clear! 6 Weeks Seizure-Free!

Diane
Appointments with the neurosurgeon and neurologist done… all the good breaks were mine today! Such amazing news!! Seizure-free, let’s bring down the dose of those meds now, shall we? YES!!!!! 💜💜💜💜💜 Tomorrow one of my morning med doses comes down, an unexpected and lovely surprise. Everything else, including my night doses, stay the same. A two-year odyssey of weaning begins – slow and easy wins the race. I got so many hugs today… it was awesome. When I delivered my card for the nurses to the Neuro ICU, one nurse announced “Right temporal lobectomy is here… and she’s NOT IN A

SIX WEEKS POST-OP, SIX WEEKS SEIZURE-FREE

Diane
TODAY…the incredible freedom from seizure clusters continues! Who could have ever thought that when medication after medication failed that one surgery could CURE me? I am astounded, and absolutely over the moon with happiness!  I have been waiting *so long* to make posts like this. Six weeks! Without a single seizure! And I’m beginning to feel like a healthy woman again.  Tomorrow I begin the trek to Tucson for my follow-ups with the neurologist and neurosurgeon on Thursday, this time with good news for a change.  Giddy with excitement, and strangely proud that I haven’t had any seizures, as if this

R Temporal Lobectomy Successful: 72 Hours Seizure-Free!

Diane
Seizure-free for over 72 hours! And, getting discharged today!! Ladies and gentlemen, this is the face of a woman who has survived brain surgery and has now officially gone 72 hours seizure -free! I know I look a little rough, but please, read on. I had 6 cm of my right temporal lobe removed, my right hippocampus, and my right amygdala removed on Tuesday, March 5, 2019. It was probably the most painful and challenging experiencing thing I have ever faced, however, I am so thrilled, so HAPPY. So grateful. If things continue, in 90 days, I can drive a

I’m out of here!

Diane
Homeward bound, wayyyyyy ahead of schedule – WOOHOO!!!!! My bilateral subdural grid placement to identify my seizure focus was a success, and I am being discharged to home. Soon I will follow up with my neurologist, then my neurosurgeon to go over the plan for the next phase of treatment, which will be surgery to remove the seizure focus identified in my brain. This will either reduce the number of seizures I currently have, or if I am very fortunate, render me seizure-free. What I thought might be up to a 30 day stay has only turned into 4 days

10 days.

Diane
10 days. 10 days until I’m admitted into the hospital for neurosurgery and a bit of a lengthy stay. I have seizures that are unable to be controlled by medications, so soon I will be having a surgical procedure that will remove the part of my brain that causes them – but first, they have to locate where exactly that is. So on November 6th I will have electrode grids implanted onto the surface of my brain, be taken off of all of my anti-seizure medication, and be monitored for up to 30 days in the hospital in an attempt