neurosurgery

SIX WEEKS POST-OP, SIX WEEKS SEIZURE-FREE

Diane
TODAY…the incredible freedom from seizure clusters continues! Who could have ever thought that when medication after medication failed that one surgery could CURE me? I am astounded, and absolutely over the moon with happiness!  I have been waiting *so long* to make posts like this. Six weeks! Without a single seizure! And I’m beginning to feel like a healthy woman again.  Tomorrow I begin the trek to Tucson for my follow-ups with the neurologist and neurosurgeon on Thursday, this time with good news for a change.  Giddy with excitement, and strangely proud that I haven’t had any seizures, as if this

R Temporal Lobectomy Successful: 72 Hours Seizure-Free!

Diane
Seizure-free for over 72 hours! And, getting discharged today!! Ladies and gentlemen, this is the face of a woman who has survived brain surgery and has now officially gone 72 hours seizure -free! I know I look a little rough, but please, read on. I had 6 cm of my right temporal lobe removed, my right hippocampus, and my right amygdala removed on Tuesday, March 5, 2019. It was probably the most painful and challenging experiencing thing I have ever faced, however, I am so thrilled, so HAPPY. So grateful. If things continue, in 90 days, I can drive a

I’m out of here!

Diane
Homeward bound, wayyyyyy ahead of schedule – WOOHOO!!!!! My bilateral subdural grid placement to identify my seizure focus was a success, and I am being discharged to home. Soon I will follow up with my neurologist, then my neurosurgeon to go over the plan for the next phase of treatment, which will be surgery to remove the seizure focus identified in my brain. This will either reduce the number of seizures I currently have, or if I am very fortunate, render me seizure-free. What I thought might be up to a 30 day stay has only turned into 4 days

We are a go for surgery!

Diane
Neurosurgeon pre-admission – DONE! Hospital pre-admission: DONE! This is really happening! One more HUGE step towards becoming seizure-free and living a normal life. On November 6, 2018, I am to have a procedure that will localize the source of my seizures: a bilateral subdural grid placement. A neurosurgeon will carefully place grids/strips of electrodes on the surfaces of my brain in order to isolate the focus, or source, of my seizures. Essentially, this is an intracranial (inside the skull) EEG, with placement directly on the surface of the brain in order to more clearly interpret where exactly my seizures are