Neurosurgeon pre-admission – DONE!
Hospital pre-admission: DONE!
This is really happening! One more HUGE step towards becoming seizure-free and living a normal life.
On November 6, 2018, I am to have a procedure that will localize the source of my seizures: a bilateral subdural grid placement. A neurosurgeon will carefully place grids/strips of electrodes on the surfaces of my brain in order to isolate the focus, or source, of my seizures.
Essentially, this is an intracranial (inside the skull) EEG, with placement directly on the surface of the brain in order to more clearly interpret where exactly my seizures are originating from in my brain.
Why is this necessary? Because the bone of the skull is enough to dampen and scatter the signal enough that the seizure focus cannot be accurately determined with any precision.
Additionally, I am non-lesional – meaning that there is no tumor, scar tissue, or other obvious lesion that may be causing my seizures that can be visually observed, hence the foci must be mapped via electroencephalography.
This is all part of the brain mapping process. Once complete, the neurosurgeon will use this information to ascertain exactly which part of the brain must be excised in order to obtain seizure-freedom or reduction.
Several grids will be carefully placed on the surfaces of both the right and left temporal lobes of my brain, I will be removed from my seizure medications, and then we wait for seizures to begin.
At least 3 seizures from the same focus are required in order for a determination to be made that the offending source has been discovered.
I will be under observation 24/7 in the Epilepsy Monitoring Unit, with a video camera in the room and an EEG tech monitoring. Should I have a seizure, I will have a button to press and in moments my room will be filled with people ready to care for me – I will be safe and well-cared for.
Once the needed data has been obtained, I will again go into surgery to have the grids removed, and upon a successful recovery I will be discharged to home with a slightly swollen head. 🙂
My stay may be up to 30 days. I will follow-up with my neurologist. There will be a meeting of the neuro minds to review the information gathered.
This is all in preparation for the actual treatment surgery: a right temporal lobectomy, which is to reduce or hopefully eliminate my seizures completely.
With any luck, I will continue to be a good candidate for this curative surgery. Not everyone is.
I’m so ready. Let’s do this!